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8/3/2019 22 Comments

Peace

Good Morning from Texas Children’s!

Today marks my first day of my journey here at the hospital. After getting my PICC line placed on Thursday, I spent my last night outside of the hospital and prepared to sign my Transplant consent forms to officially get admitted around 7:00 last night.

This is my first morning here in my official transplant room. Starting today through Thursday I will receive a combination of 5 chemotherapy drugs, multiple times a day. This will be the most intense grouping of chemo I have ever received. The side effects of these drugs can include nausea, vomiting, flu-like symptoms, fevers, fatigue, hair loss, and some other minor symptoms. During this time my immune system will be extremely compromised. Everything here on the Bone Marrow floor is very specific and cautious when it comes to cleanliness and hygiene so that every patient is kept as safe as possible at all times. After the 6 days of chemo has finished I will be given my healthy stem cells, from my harvest, back on August 9th! So when is the big big day? AUGUST 9TH! Before then and after then my body will be in both prep mode and then recovery mode.

Though I know these next two weeks are probably going to be the hardest part about this process, I am trusting that everything will happen as it is supposed to. Please pray that my body responds to the chemo in an orderly manner and that I am able to properly respond to the transplant when my blood count and immune system are rebuilding themselves.

A few nights before traveling to Houston, I listened to a song by Hillsong Young & Free called P E A C E. Some of the lyrics are “I will stand tall on each promise you make…let the rest fade away. There’s a peace far beyond all understanding. May it ever set my heart at ease. Dare anxiety come, I remember that peace is a promise you keep. Peace is a promise you keep.” "You are peace to my restless soul...peace when my fear takes hold...peace to the anxious heart...peace when I lose control."
​
I can honestly say that I am entering into this process with a presence of overwhelming peace. I know that this would not at all be possible without calling on the Lord in times of struggle and being vulnerable enough to ask for prayer in the areas of my concern. But in the moments of insane courage and extreme weakness, I have surrendered to his plan and his purpose. Since returning home from Ozark, every day when I wake up, I’ve repeated the phrase, “Lord your will and not my own.” May these words ever set your heart & my heart at ease. God has done the things he’s done and made the promise he’s made in order for us, his beloved children, to experience the joy of peace. Sometimes surrendering to His plan can be as simple as repeating seven words to yourself as you open your eyes each morning.

Am I scared? Am I confused? Am I nervous? The answer to all of these questions are without a doubt...YES! But in the end God is great, mighty, and loving. We praise and belong to a miracle working God. I will proclaim this message forever. 

Standing tall on each promise He makes.

August 9th, looking forward to ya.
22 Comments
Mikey & Family
8/3/2019 11:17:22 am

Peace. Love. Courage. Grace. You are awesome & loved.

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Jill Calder
8/3/2019 11:26:44 am

Rylie. You are in my prayers every day. I will pray for complete healing! I will pray that our mighty God will give you the strength to overcome every side effect! I will pray for the entire process to go as it should. I will pray for wisdom and discernment for the doctors and all the medical staff. I will pray for peace for you and your family. I thank God for your courage and vulnerability! I pray for Jehovah Rapha’s complete healing for you! And yes, because of your courage and leading, I will pray that God’s will be done. His perfect will that will bring glory to Him.
And by the way, Sic Cancer!! My lobe and prayers, Jill

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Patsy Dollar
8/3/2019 11:49:07 am

What an inspiration you are!! Covering you in prayers over these next weeks.

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Jim & Sharon Silver
8/3/2019 11:59:16 am

You continue to inspire us all with your fight against cancer which you accomplish with such bravery and grace! We continue to pray WITH You! We think God has a special plan for you to inspire and teach others in their fights against their own personal demons. Don't be hesitant to lean on others for help! By doing so you give them some ownership in your fight and help fulfill God's will by involving others! We are all in this together! Go get 'em girl! You are a winner!

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Sloane Grevelle
8/3/2019 01:12:05 pm

Praying for you Riley!! You are so strong. Miss you girl

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Cindy Graf
8/3/2019 02:29:21 pm

Riley, I have you on the top of my prayer list! I know a lot is going through your mind right now and the temptation to be shaken is real. God is in control and I know what is on the other side of these next two weeks is greater than you can imagine at this point and time! Stay strong. <3

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Donna Ainsworth
8/3/2019 02:49:02 pm

In our weakness, HE is strong!
Our Surrender brings perfect peace!
Praying for you!

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Kathy York
8/3/2019 03:03:05 pm

Riley you are such an inspiration to us. We are keeping you in our prayers and we do believe prayer changes things. Keep your faith in God. We are looking for amazing healing coming to you. Love you Ron&Kathy

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Audrey Arechiga-Kajs
8/3/2019 03:28:37 pm

You are in my hometown with the best technology and healthcare professionals in the world. Houston Strong! I worked in the TMC for a while after college. There is a palpable healing strength and energy in that place. They are going to help you kick this, once and for all. Sending prayers and love for you and your family.

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Connie Johnson
8/3/2019 03:33:08 pm

Riley, you are an inspiration to all who know you as well as many you’ve never met. A former pastor shared this with me : The words “Do not fear” appear in the Bible 365 times. This is no coincidence. That’s one for every day of the year! I’m so glad God’s peace is surrounding you. You will continue to be in my prayers. The congregation of First United Methodist Church in Henrietta is also praying for you.

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Dortha Forbes
8/3/2019 03:43:47 pm

Riley, we are praying for God's perfect peace that passes all our understanding! And also, for your loving family!

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Sandy Childs
8/3/2019 06:47:49 pm

You are so special Rylie and you inspire me everyday with your words and strong faith - God is with you every day and I will continue to pray for you every day - stay committed and strong - blessings😘🙏

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Bella C
8/3/2019 09:15:25 pm

Wow Rylie!! You will be and always are in my prayers! Keep writing posts please because they are so inspirational! I miss you and your sweet personality so so much! ❤️😘💓

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Sharon Foster
8/3/2019 09:25:27 pm

Praying hard for you as you journey through the chemo to get to the transplant! Praying for God’s Mighty hand to provide complete healing for you through this whole process! Sending you love, sweet and brave girl! Greater is He who is in you than that that is in the world. 💚💛💚

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Carla Amacher
8/4/2019 07:05:22 am

I went straight from your beautifully written blog to Google to find your song of inspiration. So wonderful - I will listen daily and pray for you.

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Kathy York
8/4/2019 11:44:06 am

Riley you are such an inspiration to us. We are keeping you in our prayers and we do believe prayer cha

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Susan Lucenay link
8/4/2019 05:19:59 pm

Rylie, what an incredible inspiration you are! God’s got this! Know that you and your family are in our prayers!

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Carrie Bailey
8/4/2019 06:15:30 pm

Rylie,
You have been in my thoughts and prayers. My church choir prayed for you last week and will continue to pray for you during this journey. Thank you for taking the time to post so that we know specifically how to pray for you! And thank you for the great reminder of those powerful 7 words! Love you!!

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Gary Stratton
8/6/2019 12:02:09 am

Our hearts are filled with love and prayers for you. We wish you comfort, peace and understanding in the difficult days ahead. God be with you as share your love with your friends and family. As Susan said in a previous post, your strength and will are an inspiration to all of us. May God's incredible warmth and healing bless you. You will be constantly in our hearts and prayers.

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Melanie
8/6/2019 11:59:34 am

I'm praying hard for you daily! You are so strong and your words are beautiful! Thank you for sharing your heart. I pray you gain strength and health every minute that goes by!!

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Carol Clark
8/8/2019 10:48:21 am

Sending up prayers for you today, tomorrow, and in the future. Please keep us posted on your progress.

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Jim Marino
8/9/2019 02:39:11 pm

Hey Rylie! I hope you are doing OK today - I know it is a huge day for you and your family! I "know" you indirectly through one of your fellow Baylor classmates (we have a son your age also) and have been following your story for quite a while now. I wanted you to know that my sister-n-law had a bone marrow transplant last August - she has Leukemia - or actually "HAD" Leukemia. It went fantastic and she has no sign of cancer in her body today. I know this is going to be the same for you! Please know you are always in our prayers! I have a great group of men that I have a bible study with every Friday before work - and I include you in my prayers each Friday. Hang in there kiddo - I know this stinks - I pray that God keeps you close and comforts you a little extra this weekend!

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