RYLIE'S NEXT CHAPTER
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1/31/2018 70 Comments

january 31st, 2018

Chapter three

Wow. Has it really been nearly a week since my diagnosis? The last week of my life has felt as if it were months long. I have learned so much about myself, my family, my friends, and what it truly means to be a daughter of the King.

My parents and I walked out of the hospital on Tuesday afternoon completely devastated and broken. Never in my entire life had I ever felt so lost. But after many tears, my two biggest fans (the great Jay and Heidi York) began fighting for me down here on Earth, just as much as I know all of your prayers are fighting for me at the gates of Heaven. We began the process of determining where I would start receiving care, and what the next few days would look like. I am beyond grateful that my Mom’s cousin Kim is married to Dr. Steve Patierno, Deputy Director of the Duke Cancer Institute. Steve began working for us immediately to determine where I would be receiving further medical care. In addition, my parent’s friend, Dr. Jenny Jacomides (Go Stingrays!) was consulting with us about why she felt it was important for me to be seeking out care at a facility with a seasoned Pediatric Oncology team. I am so grateful for both of them, as they fought along side my parents and I during the couple hours after receiving specific news regarding my diagnosis. I am happy to say I will be receiving care at Texas Children’s Hospital in Houston starting Friday morning at 8:45 am. 

Someone else who has been extremely present in the intense times of last Thursday night and yesterday afternoon, is my Youth Minister and my friend Brett Levy. Brett was the first person on the scene, both times, when bad news was delivered. Outside of my family, he is probably the one to have seen me at my most broken point. The levy family opened their home to the community last night, to host a prayer night for me after we had received the new news of my diagnosis. I cannot thank them enough for loving me so well.

Speaking Medically: In order for my care at Texas Children’s to begin I will have multiple tests done on my heart and lungs, followed by a procedure to surgically implant my Port, where I will be receiving Chemotherapy. During this procedure, the team of doctors will (hopefully) be conducting a Bilateral Bone Marrow Biopsy from both the left and right side of my Pelvis while I am under anesthesia. Some of these big words may seem scary, but I am anxious to start treatments and kick this thing in the butt. Though my situation is said to be “extremely advanced”, my body is otherwise strong and has been fighting this fight for a long time.

Thank you all for the continued prayers during the beginning of this process. I am looking forward to the opportunities that God has already presented to me, and will place in my path through the days, weeks, and months to come. I will share with you all something that I shared with a friend last night: This whole story, my whole story, is only the beginning of the lifelong “mission trip” that I have begun to embark on. Lord, lead me to those who are in need of encouragement and love. I pray that my story impacts people in ways that I may never come to know.

Texas Children’s here I come.

70 Comments
Anonymous
1/31/2018 01:59:48 pm

I’m so sorry you have to go through this. You have such positive outlook and attitude and I believe that you have already halfway overcome this because of that. Stay strong girl!

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paper writing service link
9/28/2018 10:17:03 am

I remember being sad and devastated when I was not promoted at work. It really affected my performance at work and I started being pessimistic in life. But reading your blog is a big slap in my face. You are facing a difficult battle between you and cancer, yet you are still optimistic in life and grateful to the people around you. I was not promoted, yet I am still ungrateful that I still have a job. I really hope that you will keep being positive, so that everyone who will read your blog will be affected and be inspired by your positivity.

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Kristi Gettys
1/31/2018 02:51:56 pm

We love you Rylie!!! You are strong beyond your years.

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Kasey Redus
1/31/2018 03:11:44 pm

Praying for you. Keep the spirit up.

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Kasey Redus
1/31/2018 03:10:25 pm

You are a beautiful writer. Thank you for sharing.

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sofia gualy
1/31/2018 03:11:38 pm

Sending all the love from H-town. If you need anything here let me know!!!

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Mikey Jaillet
1/31/2018 03:23:41 pm

Praying hard. You got this!!!

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Hannah Harmon
1/31/2018 03:46:47 pm

I love you so much girly! Choir is definitely rooting for you!! Praying for you and your family!!

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Mrs Shelly
1/31/2018 03:57:48 pm

My sweet Rylie, Texas Children’s has no idea what’s about to hit it, I plan to be reading about the revival your presence is going to bring to that institution. My love and prayers are with you always just as they have been since our first Bible study. Love you princess

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Grace Sheidow
1/31/2018 04:01:26 pm

Rylie, you are so strong and have an amazing heart. If anyone can get through this it's you!!! You got this. 👍

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Rosalinda Parra Farley
1/31/2018 04:18:03 pm

God is in control. He has
you safely in His arms.
Lots of prayers for this journey
You must travel.

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Victoria Tackett
1/31/2018 04:28:17 pm

Praying for God’s healing hand to be upon you, safe travels to HTown and wisdom for your entire medical team! May His supernatural Peace be with you and your family at this time! You are so loved, and those Levy’s are keepers:)!

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Christy Green
1/31/2018 04:51:06 pm

Sweet precious daughter of The King. You don’t know me but I am good friends with Martha Robinson and Jace is a friend of my son, Brooks. Rylie, you are so wise beyond your years and your steadfast trust in Our Great Physician is amazing. Thank you for your vulnerability and your honesty in sharing your journey. I can’t wait to watch God use you, as He already has, in ways we can’t even fathom. Kick tail, dear one. We are all on Team Rylie!

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Kjos Family
1/31/2018 04:56:33 pm

We are praying and cheering and crying and ready to hear what God is doing through you.

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Mimi
1/31/2018 06:21:17 pm

My precious, beautiful Rylie
My heart swells with pride because of the wonderful faith and love in your heart. Preston, Reid , Emma and Pop Pop and I are praying and sending our love
We all love you so much❤️

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Liz Anderson (madys momma)
1/31/2018 06:21:27 pm

Sweet girl. As I sit here and pray that healing hands are layed on you, I can't even imagine what is going through your mind. You are stronger than the enemy and I know you will beat this. You are a blessing and I know you got this. Prayers are being said daily for you.

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Momma Molis
1/31/2018 06:23:11 pm

You got this, Rylie! You are an inspiration to all of us, who proclaim ourselves as Christians. I am learning to be a more Godly person by watching your incredible bravery in this epic battle. May God wrap you in His loving arms, and heal you with his love.

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Mrs. Harrold
1/31/2018 06:33:58 pm

Rylie, I just learned of your ordeal. You are just as bright and positive as I remember. Many prayers are with you. May the Lord continue to shine his face upon you and bring you peace.

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Carla Catozzi
1/31/2018 06:37:09 pm

We are praying for you Rylie and your family. Your faith is so strong and a great witness of your love for Christ. Jesus loves you and will never leave your side.
God bless you and keep you safe in the palm of his hand and never let you go.

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Jill Hatcher
1/31/2018 06:46:05 pm

Rylie—last i saw you in person you were 2 or 3 in Temple,Texas. My middle son and you are the same age. My husband was youth minister at the church where your parents attended and dragged you along. Weird people like me are following your story. Your love for Jesus is shining thru as you kick butt. Cheering you onward and praying you through the Fight! Sic ‘em, Rylie!!

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Dee Dee Emmitte
1/31/2018 06:49:16 pm

You are an incredible young lady and you’ve already shared the light of Christ to so many through your amazing words. The Emmitte’s love you and are praying for you to be overcome with strength and an unwavering peace. You have an army behind you Rylie!!

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Jill Calder
1/31/2018 06:49:39 pm

We will be praying every day for you miraculous healing and peace and strength for you and your family!

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Martha
1/31/2018 06:52:57 pm

Praying continually

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Susan Pruitt
1/31/2018 07:19:00 pm

Rylie;
You do not know me, and I do not know you aside from watching you play basketball in JR. high. I am the Aunt of Amber Downs and a lover of basketball so, I watched you play often. Now, my life intersects with yours once more with the shocking news of your recent diagnosis. Once again, I find myself rooting and cheering for you. Only now, I watch as you gracefully and bravely navigate and battle in the fight of your life. It’s easy to tell by your writings that you are wise beyond your years. Your knowledge of and relationship with GOD will carry you through! Matthew 11:28-30...Cone to me, all you who are weary.
Know that You have the love and support of people you don’t even know! We are all praying for your immediate healing, comfort and peace.
Love and continued prayers sweet girl.

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Kristin Harden
1/31/2018 07:25:24 pm

Go Rylie! You are so amazing! I am so excited to watch a miracle happen through you! I’m praying for you, your parents, siblings and Soctors/Nurses. Hugs!

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Coach Tilton
1/31/2018 07:25:29 pm

Rylie,

Your courage, strength, and faith will see you through this.
I have battled cancer along-side my mother, father, sister, and husband. All of them held strong to their faith and their network of support. Know that you are loved and always be willing to ask for help if you need it.

You are loved Rylie. Our thoughts and prayers are with you.

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Sam Torn
1/31/2018 07:27:48 pm

Rylie. All of the Camp Ozark family is praying for you and we all send our love.

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Lana Walker
1/31/2018 07:49:00 pm

The Walker fam is praying hard for you!!! I am so incredibly proud of you for choosing to see the Lord through this trial. He is so very faithful!!

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Ann Chenault
1/31/2018 07:53:28 pm

Rylie our prayers are constant for you & your family! Love you!!!

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Tonja Eaton
1/31/2018 08:24:14 pm

He is working in your favor. We continue sending love and lifting prayers. You amaze me.

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Kim Patierno
1/31/2018 08:24:18 pm

Rylie, He is with you, all around you, you are loved and prayers are going up continuously.

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Amy Dimon
1/31/2018 08:25:30 pm

God be with you always sweet Rylie!!!!

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Margie Gray
1/31/2018 08:35:26 pm

Rylie....you are amazing...following this journey with you is a gift...we will learn so much through you as you touch us all & share Christ. I adore your determination, your heart, your passion... God spread your Grace over Rylie and her family...Grant Rylie more strength ever moment of every day, wrap her in your arms tightly... we lift Riley up Lord in prayer. We know your are so powerful. We thank you love she shares for you & her spirit to share your goodness even in these infavorable times. God bless this child of yours!

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Lori Adams Wilkerson
1/31/2018 08:44:20 pm

Rylie~
You don’t me but I am one of your mom’s pledge sisters from BU. I have loved seeing pics of you and your siblings on FB and watching you guys grow up.
My heart is breaking for you and your sweet family. I have already been blown away by your thoughtful and articulate posts and your spiritual maturity. My parents have both been diagnosed with cancer in the last two years so I know this won’t be an easy journey. However, I truly believe God has big, HUGE plans for you and wants to reach people through you. We commit to pray for you and your family daily. Go Team Riley!

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Ms. Grantham
1/31/2018 08:54:16 pm

I know you are being flooded with texts, calls, and messages, but I have not stopped thinking about you or praying for you and your sweet family. There is a Rylie size hole in the choir room and we are all so anxious for you to be able to return. I can’t imagine how people experience grief in this life without hope in our amazing Lord. Thinking of you and the fighting spirit he gave you brings tears to my eyes, hope to my heart, and it makes me feel the great weight of the glory of our God. You are so very cherished.

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Julie Adkins
1/31/2018 10:12:44 pm

Love you, Rylie! Thank you for your posts. Your are being prayed for lots here at our home...hugs and love!❤️

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Anne Graham
1/31/2018 11:14:22 pm

You are amazing. I don't know you but I love the strong young woman/warrior you are. Many blessings in your battle beautiful child.

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Sharon Hytnen
1/31/2018 11:15:43 pm

Hey Rylie,

Just wanted to let you know I'm praying for you from way up here in Seattle, and am so impressed and encouraged by your faith and maturity. I hate so much that you and your incredibly awesome family are having to face this, but i hope and pray that you will see a new side and know a new intimacy with our Savior through these tough times. Thanks for sharing and never give up.

These are my prayers for you:

May the God of hope fill you with all joy and peace as you trust in him, so that you may overflow with hope by the power of the Holy Spirit. Romans 15.13

We continually ask God to fill you with the knowledge of his will through all the wisdom and understanding that the Spirit gives, so that you may live a life worthy of the Lord and please him in every way: bearing fruit in every good work, growing in the knowledge of God, being strengthened with all power according to his glorious might so that you may have great endurance and patience, and giving joyful thanks to the Father, who has qualified you to share in the inheritance of his holy people in the kingdom of light. For he has rescued us from the dominion of darkness and brought us into the kingdom of the Son he loves. Col 1.9-14

Love ya lots,
Coach Hytnen

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PM
2/1/2018 12:08:18 am

Rylie sweet girl, KICK BUTT!
Wrapping you, your family, and your team in prayer.

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Natalie Green
2/1/2018 03:39:54 am

Dear Rylie,
I am your Aunt Shelby’s friend...and we are ALL PRAYING FOR YOU! I am praying for complete and miraculous healing. The kind of healing that can only point to Jesus and draw others into His perfect love.
Love, Natalie

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Cindy Graf
2/1/2018 05:58:04 am

You got this Rylie! Taking this one step at a time and leaving God in charge will get you through this journey. I survived all the test and treatment while in my 40's and I asked God at that time to use me. I'm here for your family if you need me. Lifting you, family and doctors up in prayer.

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The Schweigers
2/1/2018 06:06:55 am

The Schweiger family is lifting you up in love. You are a special girl and have an amazing heart and spirit You light up any room you enter. All of Round Rock is behind you!

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Loren Renfroe
2/1/2018 06:19:20 am

You have been on my mind every day, Riley. I have always been -- and will continue to be -- impressed with your positivity and percerverenece. I send all of my love to you as you fight this, girl. 💜💜💜💜

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Sharon
2/1/2018 07:26:53 am

Rylie, prayers from Arkansas for you and your family...asking for complete healing, and for HIS continued Power and Strength to wash over and keep all of you. Praise GOD from whom All Blessings flow! 🙏🏻☝️🙏🏻

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Kristen Pearson
2/1/2018 07:27:21 am

Rylie....small world that we have the mural friend Shanna Downs. I learned of your diagnosis from her FB page. All of us here at Dr. Singletary's office (Texas Tooth Fairies) are praying and rallying behind you!!

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Mindy Pierce
2/1/2018 07:37:40 am

Precious Rylie, I am a friend of your mom and her family from growing up. Your words and actions are AMAZING and clearly your IMPACT has already begun in a major way. I am so very sorry you are having to go through this. I promise to hold you and your family so very, very close in my prayers!!!!!!

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Jim & Sharon Silver link
2/1/2018 07:46:51 am

Here is another quote from Winston Churchill: "Fear is a reaction. Courage is a decision."
I think you have found your calling in life. You are a natural writer, and really good! Keep writing. I think God has a plan for you! I really enjoy your writing style. Hang tough! You can do it!

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Haley Schneider
2/1/2018 08:49:25 am

Hey girl! It's Haley from swim team ahah #stingrays4life. Your story is so beautiful. The Lords presence is so evident in every piece. He is clearly your strength and for that you are going to DOMINATE this!! "Just keep swimming" you are in my thoughts and prayers. Cancer is gonna eat your bubbles!!! -Jeremiah 29:11-

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Greta poole
2/1/2018 08:57:26 am

My family is praying for you. Whatever happens, God will be there to guide you.

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Zolper Family
2/1/2018 09:10:25 am

Rylie, we are so deeply touched by your faith and maturity in the face of such an overwhelming obstacle! You are a strong and amazing young woman. Please know that we lifting you, your family and your medical team up in our prayers every single day.

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Jenifer Blackmon
2/1/2018 09:18:24 am

Rylie, you don't know me, but I am a RRHS parent and we have several mutual friends. Sweet girl, I just wanted you to know that I am praying for you and your family and am sharing your story with all my prayer warrior friends. Lean into God during this difficult and scary time. He is our almighty healer and gives us strength, peace and comfort that is beyond all understanding. You have so many people praying for you right now. I hope you feel completely covered in prayer! Much love from your Sister in Christ.

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Deb Brusseau
2/1/2018 09:23:21 am

You are in my daily thoughts and prayers, Rylie. Your strength and faith in the face of adversity is awe inspiring.

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Jennifer Cunningham
2/1/2018 09:37:41 am

Rylie, we are praying for you constantly. Please know you have legions of people known and unknown to you praying and pulling for you.

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Laura Childress link
2/1/2018 10:04:23 am

Hi Rylie ! I'm a current Baylor student and stumbled across your story. I will be praying for you. I can't imagine what a scary time this must be. Some things (on a MUCH smaller scale) happened to me right before college, and it was a very difficult time in my life. However, it really helped me rely on God. Getting ready to leave for college is intense enough without added stress, I'll pray this is resolved SO quickly. Congratulations on your Baylor acceptance and I can't wait to meet you next semester! SIC EM :)

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Kim Mashburn
2/1/2018 10:45:16 am

Dear Rylie, Ashlyn and I are praying for you! We will continue to do so and know you are God’s warrior. He will comfort you and cover you in love, as we all do. We continue to pray for strength and grace during your battle. You are so strong and brave! You got this! Hugs to your mama. ❤️

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Marnee Thompson
2/1/2018 10:49:03 am

Rylie you are in my thoughts and prayers. This Journey is going to only make you stronger . The Love and Support is a must and I can see you have pleanty of it all around you . It’s just as important as the medicine that will kick Cancers butt ! I had a brief introduction to Cancer with Emily my youngest at 9 months old . She was given a 20% chance of making it though the fight . Well she made it and is about to celebrate her 16 th Birthday. The Bone scans and ports and test after test wears on you . This fight is yours to fight and you will give it all you got . Heidi as a mom with a child Diagnosed with cancer my Heart and Soul is with you as well as your family . Family and friends are so important . Prayers from Emily and Marnee .

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Sharon Muschalik
2/1/2018 11:08:45 am

Hi Rylie- I saw your story on the Baylor Tri Delt alumnae FB page...Prayers for you and your family! Thank you for sharing your heart! If you or your family needs anything while in Houston. We are here and happy to help. Sic ‘em!!!

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Melissa Strachan
2/1/2018 11:11:47 am

Rylie - You don't know me, but I am a RRHS mom and am mutual friends with many, many people who love your precious family. I have seen your cute Jeep driving in the neighborhood and seen pictures of you over the years with some of our sweet mutual friends. Even though from a distance I could tell you were beautiful on the outside, I can now see that what is on the inside of Rylie York is what is so stunningly gorgeous. You are NO DOUBT a child of the King. You, my young warrior have a beautiful faith are a force to be reckoned with. I am honored to be one of an army of believers that will be praying alongside you for complete restoration of your health. May God’s peace and confidence and comfort surround you and your family on this journey to healing.

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Brad Harwick
2/1/2018 11:20:34 am

Team Harwick has you in our prayers! Lean on ALL of us.

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Judy Shubert link
2/1/2018 12:30:16 pm

Dear sweet girl, you have touched the heart ❤️ of this old woman! Yes, God is in control, and He has plans for you and your story. J.J. And Stephanie Cox are dear family members of mine and I understand your parents know them well. I live just outside of Durham, minutes away from Duke, so if your care changes from Houston to here, please let me know.

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The Linenberger Family
2/1/2018 12:53:35 pm

We are praying for you and your family! Be strong and courageous for we know that the Lord, our God...He is with you every step of the way on this journey.
Much love, hugs and prayer from Ellie and her family!!!

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Patsy Dollar
2/1/2018 01:35:01 pm

I’ve never met you but I can tell by your words you are an amazing young woman. I am sorry you have to go through this but thankful you know the One who can see you through.
I go to FBC Graham with your grandparents who by the way are delightful people 😊
Praying for strength for this day.

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The Scott Family
2/1/2018 01:37:08 pm

The Scott Family and all of our extended family are lifting you and your family up in our prayers! Our Lord and Savior IS STILL IN THE BUSINESS OF MIRACLES in so very many ways!

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Stephanie Vanskike
2/1/2018 03:01:31 pm

Although you don’t know me Rylie, I have watched you grow up on Facebook & have admired your strength, grace, and wisdom beyond your years from afar. You were so very young when y’all moved from Beaumont, but that smile is unforgettable! You have an amazing spark & light that can’t be dimmed. My heart breaks for what you are enduring right now, but the testimonies, celebrations & miracles to come are boundless by the Mighty God we serve! You’ve got this...and when you feel like you may not, it’s ok bcyou’ve got a legion of prayer warriors lifting you! By His stripes Rylie is healed!

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Carmen Buford
2/1/2018 04:17:36 pm

Gosh Rylie wow I know we haven't talked in a long time but praying for you

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Kirsten Prud'homme
2/1/2018 04:20:54 pm

Rylie

I pray for you to coninue to find the comfort and love of our Lord through this process. You shine a bright light for all to see. Will be praying for you daily

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Natalie
2/1/2018 04:47:53 pm

As someone who went through a severe medical crisis a year ago, I know that Texas Childrens is the best place to be! The team of doctors there are incredible and the nurses are so kind and amazing. They made a scary time so much easier. I’m praying for you and your family!! Much love 💗

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Alissa Jones
2/1/2018 05:09:16 pm

All of my love & prayers to you!!

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Judy
2/2/2018 06:28:38 am

We are praying for you and your family. God will guide you and we

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The Elders
2/4/2018 01:39:51 pm

We love you. You and your family are in our prayers. You are strong. You are inspirational.

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