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2/9/2018 40 Comments

February 9th, 2018

Chapter seven

Oh, Texas Children’s.

What an impact this Medical Center has had on my life thus far. 3 weeks ago, I could have never imagined being admitted to such an astounding care facility in a matter of hours and suddenly beginning my journey as a cancer patient. Throughout my time at TCH, God has placed the perfect people in my life at the perfect moments. The coolest thing about that fact is through all the confusion of this whole situation, I somehow knew the Lord would provide who I needed, and when I needed them…even when I didn’t know they would soon cross my path.

My Child Life Specialist, Alyssa for example popped her head into my little room on the 9th floor my first day in the hospital. Her constant support through the placement of my PICC Line, and random moments of checking up on my parents and I made a huge difference in our transition to what life would look like for the next week. Another blessing from the last week have been the sweet people who devote their days and nights to the constant bed side care of each patient in the hospital. Oh my sweet nurses. For multiple days in a row I had two special people in my life for a short amount of time. I want to send a special message to Kate and Katie, both of whom were my day and night nurses during my first 3 days of chemotherapy. Thank y’all for showing nothing but love and support in the exact moments I needed it. It is absolutely crazy to see the new relationships that have formed in the short amount of time that I have been diagnosed. I am more than excited to build many more down the road.

Today, I am sitting in my bed, my room, and my house after having come home from Texas Children’s late last night. An unexpected 8 day trip to Houston, Texas has already changed my life for the better. I can honestly tell you in this moment I am at a loss for words just imagining the many more days of blessings that have been set before me. “Home” is a special word. I came to understand last night as I entered the doors of my home in Round Rock that there are forms of “Home” everywhere around us. Yes, it is wonderful to begin attempting to enter back into life in Round Rock, but Texas Children’s has quickly made an imprint on my heart. This is true due to the people who have been called to spend their days working towards healthier and happier moments for the patients and their families. I am looking forward to spending my days of treatment under the loving and consistent roof of such a special place.

Medical Update: I have come home from TCH with a full and complete plan for my personal Chemotherapy and treatment. Right now, the plan is for me to receive 5 rounds of treatment, each round lasting 3 weeks long. I will be receiving treatments in Houston during days 1, 2, 3, and 8 of each round. Individual infusions will take place on these days through the “Out Patient” clinic at TCH, while I will be continuing to keep up with multiple prescriptions at home. I ask for prayers in this area, given that I never I could have imagined being an 18 year old who would need to keep up with 4 to 5 prescriptions multiple times a day. I know all of this will eventually become my new normal, but it is a lot to grasp right now. This past Monday I had a Bone Marrow Biopsy of both the left and right sides of my pelvis. This was a new kind of pain for me, but the procedure was successful. I am ecstatic to announce that the biopsy has come back negative, and the cancer is not in my bone marrow!! It was wonderful to receive this news on a night in the hospital when my spirits were in the middle of a rough patch. On Wednesday I had my third Echocardiogram which has also shown even more improvement involving the fluid around my heart! Yesterday, before being discharged from the hospital, I had my PICC Line removed from my left arm where I had been receiving Chemo for round one. Before I begin round two in a few weeks I will have a Port placed for all treatments in the future. Wow! Thats a lot of information all wrapped up in a few sentences. I am looking forward to my upcoming treatment days and what life will look like for me in the next 5 months to come.

Lastly, I want to say Thank You. I have come to approach many new curves in my race of life, but each turn becomes a little more familiar and easier to drive on as the days progress. I send All my love to each and every person reading these words. Thank you for joining me on the road trip. Thank you for jamming along to the happy and sad songs, and sometimes the songs that simply leave us in awe of the crazy life we have the opportunity to live.

​
“Live. And Live Well. Breathe in and breathe deeply. be present. do not be past. do not be future. be now. On a crystal clear, breezy 70 degree day, roll down the windows and feel the wind against your skin. feel the warmth of the sun. if you’ve recently experienced loss, then grieve. and grieve well. at the table with friends and family, laugh. if you’re eating and laughing at the same time, then you might as well laugh until you puke. and if you eat, then smell. the aromas are not impediments to your day. and taste. taste every ounce of flavor. taste every ounce of friendship. taste every ounce of life. because it is most definitely a gift.” -Kyle Lake

40 Comments
Naomi Yost
2/9/2018 12:56:13 pm

Tears of absolute awe...at you and our God, whom you're always pointing us toward. Love you so much.

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Molly Harris
2/9/2018 12:56:31 pm

So glad you are home! So glad the bone marrow biopsy was negative! So glad the echocardiograms are showing improvement! Praising God every step of the way! Will continue to pray for you everyday!

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Laurie McDonnell
2/9/2018 01:07:51 pm

Thrilled you are home sweet girl! Your words are beautiful and your strong faith inspires everyone. Sending big prayers for you and your entire family every day! Hugs!

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Chanta Sheidow
2/9/2018 01:10:22 pm

So, so, so, happy you are home Rylie! You continue to amaze me! Stay strong, you've got this!!

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Brenda Kouri
2/9/2018 01:18:45 pm

I'm so glad you're home! I hope you're feeling better and better every day.

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Roberson Family
2/9/2018 01:45:38 pm

Oh sweet girl! Such beautiful words!!!! Being a Houston girl myself I know EXACTLY how you feel about the Med Center. I have very very dear friends who have fought your fight right where you have been. And I can absolutely tell you this YOU WILL WIN! You are in the most perfect place the whole world goes to! And God will put the most perfect Angels infront of you! Thank you for letting us ride along with you! Welcome Home!

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Donna Ainsworth
2/9/2018 01:47:01 pm

Rylie,
I am thrilled you have Round 1 behind you along with a plethora of tests! There is no place like home for a few days, so enjoy the moments! Every day is a gift from God! You are being lifted up in prayer by a host of people in Graham, Tx. Love your sweet smile!!

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Tiffany Phillips
2/9/2018 02:03:05 pm

Thrilled you are home! Stay strong and we continue to send prayers! Hugs!

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The Azuara Family
2/9/2018 02:00:03 pm

We’re so happy that you’re home Rylie!!
Praying for continued grace and mercy on your journey.
We love you so much!

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Horton Family
2/9/2018 02:06:42 pm

We're glad you're home. Your words are inspiring - keep up the good work. :)

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Jason Fuller
2/9/2018 02:26:49 pm

Glad you’re home. Thanks for the updates. We appreciate it more than you’ll ever know. We pray continuously for you. We pray for comfort and healing for you and your sweet family. We know you’re in great hands, literally and spiritually.

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Vidya Srinath
2/9/2018 02:59:24 pm

Dear Rylie, You don't know me, Sweet girl , but I know you. I have known your mom for a long time now. Very very happy that you came home. That's one of the best news other than that the biopsy came negative!!! Prayers are there for you from the entire community. That's the impact you and your family have made in this community. Your parents are gems!
We follow Hinduism. I have been praying constantly to Hindu God of Health.
You write very well!! Take care girl!!

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Kim Villarreal
2/9/2018 03:01:09 pm

In awe of you, sweet Rylie! Prayers for every step of this journey.

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Ann Chenault
2/9/2018 03:10:45 pm

Rylie thank you so much for taking us on this journey with you through your words, your total commitment to God and your ever present joy!!! We love you and your family so much!

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The Forse’s
2/9/2018 03:20:29 pm

Thank you for sharing your journey Rylie, your words are so inspiring to all that read them. Stay strong, we love you!

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jennifer cunningham
2/9/2018 04:13:09 pm

Rylie, thank you so much for sharing all your news and journey with all of us. We think of and pray for you constantly. You are so brave and so strong!

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Rita
2/9/2018 04:58:24 pm

Rylie what wonderful news you received this week. While the treatments may seem daunting, the bone marrow biopsy and echo were reasons to rejoice!

I love your insights on home and life. While I'm not going to lie, we'd all probably prefer a different type of road trip, we are blessed by your courage, faith and spirit on this one. Stay strong beautiful girl!

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Lesley
2/9/2018 05:22:27 pm

Thrilled you are home! I know you are leaving an impression on everyone's hearts at TCH. Take it one day at a time. He's working something big through you, this I know.

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Jill Calder link
2/9/2018 05:49:12 pm

I am so thankful that you are home! I will continue to pray for God's complete healing and that He will continue to direct your medical staff and bring the exact nurses and doctors in your path along the journey. You and your faith are amazing and an inspiration to all of us who are following along on this journey, and praying for God's direction for every step. You and your parents are shining God's light during difficult days. We will keep the prayers coming!! My love and prayers, Jill

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Kristin Elder (the Elder Family NM)
2/9/2018 05:58:25 pm

You are lovely, strong and inspirational. We are praying for you, and your family (your Mom is my cousin). We are so thankful for the positive results from the bone marrow testing. Many have been blessed by having you in their lives. Your parents, siblings, friends, grandparents, teachers, coaches, cousins, nurses, doctors... the list goes on. Those you have touched (you have, and continue to touch many - are behind you with prayer.) God Bless and much love.

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Kim Mashburn
2/9/2018 06:22:21 pm

So glad to hear you are home! We are still rooting for you and praying for comfort and healing. Love to you all!

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Lisa Mack
2/9/2018 06:38:10 pm

Rylie, hugs and love and prayers and awe for you and your family. You are a warrior. You move us to tears with your faith and grace and strength and doubts and love.

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Victoria Azuara
2/9/2018 07:21:53 pm

You are truly amazing Rylie! Love and prayers 💜

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Krissy
2/9/2018 07:28:33 pm

I’m so thrilled you are home!!! Sending my love and prayers all day, everyday.

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Brigitte McKinney
2/9/2018 08:01:49 pm

I am glad you are home. Your written words are beautiful such as you inside and out😘

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April Zwerneman
2/9/2018 08:01:57 pm

Rejoicing with you that you are home and over this mile stone! Lifting you and your family continually in prayer ❤️

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Notgrass Family
2/9/2018 08:54:35 pm

Praying for continued strength for the journey ahead. God is on your side and so are thousands of others!!
"... Be strong and courageous. Do not be afraid; do not be discouraged, for the Lord your God will be with you wherever you go.”- Joshua 1:9

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James & Sharon Silver
2/9/2018 10:33:16 pm

You write such inspiring words! Thank you for sharing your experiences with us. The narrative is good writing - the insight is great writing! You are wise, and mature beyond your years! Your strength, optimism, and faith are absolutely incredible! We are very proud of you! You are a role model for us all!

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Pop Pop
2/10/2018 07:44:11 am

Rylie, you continue to amaze this old man. Living for Jesus! That's what you have always done....keep it up sweet one, you are an amazing disciple for your Lord. I am your proud Pop Pop. Amen and amen!!

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Mimi
2/10/2018 08:36:44 am

Precious Rylie
My heart is bursting with love for you
God has given you strength and great wisdom as you travel this tough road
You are an inspiration to so many
I love you💕💕

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Elizabeth Dixon
2/10/2018 09:52:24 am

Hugs sweet girl!❤️

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Carla Catozzi
2/10/2018 09:54:44 am

Praising God that your bone marrow is negative. Continued prayers on your road trip to recovery.

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Dee Dee
2/10/2018 10:16:39 am

I am so thankful you are home and thankful for the people God has put in your life to care for you through this journey. Your words are nothing less than inspiring. We continue to pray daily! Love you!!

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Cindy Graf
2/10/2018 01:24:34 pm

You are a special and brave young lady! Many blessings to you as you make this journey.

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Kirsten Prudhomme
2/10/2018 01:44:29 pm

So glad to hear you are home. Was so glad to hear that you had the opportunity to meet Charlie . I work with her and ism inspired by her each day just as ism inspired by you. Continuing to pray for you and your family. May you continue to feel Good wrapped around you on this journey .

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Stacie Wollam
2/10/2018 09:41:53 pm

We are so happy you are home! Prayers for easy transition with the meds and continued good news with the treatment plan. Love reading your chapter updates!

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Brad Harwick
2/11/2018 06:20:49 am

Rylie, Team Harwick has you at the top of our prayer list. Your spirit is bright and attitude remarkable. We only live a couple of blocks from your RR home so please let your mom and dad know we are here for anything they might need. Anything.
Brad Harwick (Mallorys Dad)

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Janet Svrcek
2/11/2018 01:28:42 pm

Woo-Hoo! Great news on the bone marrow and echo!! So glad to hear this. I'm keeping you and your family in thoughts and prayers. God is good!

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Marcela Froelich
2/11/2018 03:28:50 pm

Sweet Riley,
Welcome home!, you are truly an inspiration, having God in your life, and see how beautiful an strong is your faith, and the gratitud you have for all the people around you is amazing ,and inspiring many people to have a very strong faith! Thank you for sharing your history! Praying for you and your family always!

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Moreno Family
2/11/2018 06:15:25 pm

Riley,
So glad you are home and can sleep in your own bed. We are continuing to pray for you and your family.

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