February 12th, 2018

2/12/2018 47 Comments

February 12th, 2018

Chapter eight

It’s gonna be a bright, sunshiny day.

Happy Monday! I am currently sitting in the back of a car that has carried me on and towards many adventures. Not just specifically this car, but “our car”. An invention used to allow people everywhere to travel almost anywhere they need to be. As I got in the car this morning, I likened my excitement of heading back to Texas Children’s to the equivalent of leaving for a new adventure. That feeling you get when you’re headed to the airport, about to hop on a plane headed to a new destination. It’s a nervous but hopeful feeling. Believe it or not, looking out the window of the car as we travel to Houston is just as exciting as it would be to gaze upon the clouds out an airplane window. This morning the sky is blue, the air is crisp, and the Lord is ever present in the rays of sunshine beaming down on the road set before me.

Want to hear something totally fun? A few days ago, an amazing company called “Jadelynn Brooke” contacted me with some of the sweetest and most energetic words I have heard throughout the beginning of this process. Being a total fan of their clothes and products, and already having owned some, I was completely shocked that such a big company would be contacting me regarding my story and my new reality. Jadelynn Brooke is a company founded by 3 sisters whose mission is to clearly make the Lord known, radiate happiness, and provide you with some cute stuff while you’re at it. this year their message for audiences to see is a campaign called “Girl on a Mission”. I was so thankful to receive multiple t-shirts for myself and my close friends as well as other merchandise to showcase this “Girl on a Mission” mentality. Jade, Lexi, and Brooke: If you’re reading this, please know that you already have been a huge part of my perspective on this whole journey. It is crazy who God puts in our lives when we need them most. I am proud to continue living as a “Girl on a Mission”.

Today is Day 8 of my First round of Chemotherapy. I will be receiving a new infusion through an IV and then hopefully headed home today after treatment. Recently, I have started to deal with a new muscular discomfort in my legs, probably an aftermath pain of my bone marrow biopsy. But, other than some acid reflux burns from my steroid, and the feeling in my legs…I have been pretty good.

If you couldn’t already tell, I have a huge passion for writing. Due to the fact that I will soon be in the middle of my 1st round of chemo, and hopefully laying low on a bunch of medical updates for a week or so, I would love to answer questions through my posts. I enjoy a good dance party (comment some good tunes), talking about musicals, and even hearing about new favorite foods (I am hungry all the time haha). I will happily tell you everything you’d want to know about those topics, but I would also love to chat about my faith, your faith, and just crazy life stuff. That being said, no question is too small. I am excited to share more about what makes Rylie, Rylie.

A little message to start off your week on the right foot: Live everyday to the fullest. We are not promised tomorrow, next week, or even the next hour. I encourage everyone to look for joy in the little things. I still feel as if my life has been flipped upside down, but trusting in the Lord’s plan for even the next minutes of my life is sometimes all I have to lean on.

I am not afraid. I was made for this. -Joan of Arc

Maria Scott

2/12/2018 11:05:15 am

Rylie, it was such a pleasure meeting you today. I enjoy a great blog every now and then so, I look forward to reading more about your mission, the people you meet, your experiences, your faith and your triump! I will be looking into Jadelynn Brooke because I am fond of t-shirts that speak. Speaking of musicals....have you seen The Greatest Showman? Again, sorry about using that right hand. ;)

Rye

2/12/2018 01:05:05 pm

Thank you so much for being so wonderful! You started off my day wonderfully. & yes!! I LOVE The Greatest Showman! I have all the songs memorized hehe!

Katelyn Grant

2/13/2018 03:22:33 pm

I have see the movie twice, have all the songs on my playlist, and have them memorized as well. It is my new favorite! I love the greatest showman!

Jennalee Trammel

2/12/2018 05:51:05 pm

Hi Rylie. You do not know me, but I am praying for you! God has brought your story to me from multiple people! First of all from my sister, Jillynn Shaver (Jackson Shaver’s mom), and from multiple Tri-Delts from Baylor. (I went to Baylor and was a Tri-Delt before your mom got there❤️) Your story and testimony are already reaching so many! You are brave, and strong and a beautiful writer. My husband, Brent, has brain cancer. We have been battling 7 years, so I know a thing or two about chemo and treatments. God brings you to mind often and I just wanted you to know there are soooo many believers lifting you up and cheering you and your family on!! Much love and continued prayer from Plano, TX!

Debbie B

2/15/2018 05:58:54 pm

Rylie, you don’t know me but I’m a Dragon Mom and have been following your blog and praying for you. You are such a beautiful girl inside and out and God is using you in a mighty way! I’ve shared your blog with family and close friends so they can pray for you. I hope it’s okay to share on Facebook. Your testimony will be a blessing to so many. Some of my favorite worship bands at the moment are Elevation Worship and All Sons and Daughters. They give me peace when aim feeling anxious. Praying you get through this next week feeling strong! “In your strength I can crush an army; with my God I can scale any wall.”
‭‭2 Samuel‬ ‭22:30‬ ‭NLT‬‬
http://bible.com/116/2sa.22.30.nlt

Jennifer Martin

2/12/2018 11:33:46 am

Rhylie, I found out about you yesterday through Jadelynn Brooke’s post about you. I admire your strong faith so much! I am trying to strengthen my relationship with God personally. You are going to beat this cancer!! I love Legally Blonde the Musical and Hairspray probably the most! I was actually Velma Von Tussle when we did it my Senior year of high school. I’m praying for you and following this journey of yours the whole way!!!

Peyton link

2/12/2018 11:46:32 am

Hey girl!! I love you so much, and I haven't even met you! Anyway, what's your fav musical??

Rye

2/12/2018 01:06:53 pm

Hi friend!! I have so many favorites oh my goodness. I would have to say right now, Hamilton, Dear Evan Hansen, or Once!

Emily Pharr

2/12/2018 11:50:46 am

Sweet girl! I am loving your voice and outlook on life. It is not only uplifting and inspiring but real and enriched with the one who matters. I am in complete awe that the same sweet girl I used to sing with in choir while we braided each others hair and laughed under the supervision of Mrs.Scott, also my neighbor (who I never see sadly), is facing this challenge, but he gives the toughest battles to the strongest who can handle it. I adore you. Have you watched "The Last Five Years" with Anna Kendrick? It was originally a musical but then they turned it into a movie and the soundtrack has quickly become one of my go to shower jams. Also, the macaroons from whole foods are an essential comfort food. Always in my prayers and thoughts Rylie! Keep up the writing and the good fight. God is good, all the time. All the time, God is good. <3

Rye

2/12/2018 01:09:20 pm

Hi friend :-) I actually have seen The Last 5 Years! I liked it!

Karlie Dyer

2/12/2018 11:52:21 am

Been jamming to Mosaic MSC lately, highly recommend!

Liza Hubenak

2/12/2018 12:43:39 pm

Learned about you yesterday through JLB and your words are so inspiring. You are so strong and brave. Your faith is so uplifting. I am a cancer survivor myself. Please don’t ever stop living your life to the fullest. Yes there will be those very tiring days...but once you get your strength back, get back out there and enjoy the beautiful sun, the blue skies, the grass, the trees, the smell of fresh air, your friends, school, your family, but most important God! Don’t you ever give up #be brave #kickcancersbutt
Praying for you always!

Andie Coker

2/12/2018 12:48:52 pm

If you’re in the mood to listen to soundtracks from musicals, the Waitress and Dear Evan Hansen soundtracks are seriously phenomenal!!

Rye

2/12/2018 01:10:07 pm

Yes!!! Those are some of my favorites!!!!!

Vicki Lee (Graham TX)

2/12/2018 01:07:14 pm

Hi, Rylie! One of Connie & Gary’s friends here. I’m praying your acid reflux & leg pain abate, your new infusion goes successfully to bat, and you can soon return home. Thanks for bringing us all along on your journey and giving us the privilege of interceding on your behalf.

I just saw Jadelynn Brooke’s spectacular post about YOU, and pray it’s just one of innumerable opportunities God will give you, through this unexpected path, to share His gospel!✝️

In other news, along with our big grandkids, I recently enjoyed a remarkable stage production,“The King and I.” You should check out this true-life story, with its comedy, tragedy, and stay-in-your-head songs, i.e. “I Whistle a Happy Tune”

You are in my family’s ONgoing prayers!
~"My times are in your hand." (Psalm 31: 15)

Rye

2/12/2018 01:12:50 pm

Aw! Awesome! I have been wanting to see The King & I on stage eventually :)) it is one of my earliest childhood movie memories when I watched VHS tapes at my grandparent’s beach house.

Vicki Lee

2/12/2018 02:01:20 pm

You will LOVE this revival production. The period-authentic costumes are breathtaking! Until you see the show in person, please take a look at the video at link, and you’ll see what you have to look forward to. I was told that dance scene ballgown cost more than a modest size HOUSE.😳 How did Mrs. Anna ever keep from tripping in that gargantuan hoop skirt?!😆 http://thekinganditour.com

Jenny Jacomides

2/12/2018 01:23:33 pm

Hi Rylie! You are such an insightful and prolific writer and a beautiful vocalist...I am wondering if you have considered writing songs? Perhaps collaborate with a friend who plays guitar or piano...instrumentalists always have so many melodies running around in their head. Music is such a powerful voice for storytelling, both the good and the bad. We are so proud of you!!

Rye

2/12/2018 05:36:09 pm

I haven't ever thought about writing songs...but I do have some friends who could possibly be instrumentalists for me. There is actually a recording studio at Texas Children's where patients can come in and they will help you write a song based off of how you're feeling about your journey, treatments, etc. Hopefully I will look into it sometime soon!

Carson

2/12/2018 01:43:50 pm

Hey girl! I dont know if you even like reading (or you might have already read this book) but your last quote made me think of a book I'm currently reading! It's called Crazy Love and I havent finished it yet but so far it is amazing! If you're ever in the mood for a good read look into it!! Also your blog puts a smile on my face every time I read it!!

Rye

2/12/2018 05:36:54 pm

Ah! Thank you! I will look into it!

Brigitte McKinney

2/12/2018 01:55:51 pm

As I watch the Olympics and listen to the athletes’ stories about overcoming obstacles I constantly think of you! I think about how you are overcomig obstacles everyday just like thr Olympic athletes. You are an inspiration to all through your faith and family. I say a prayer for you everyday❤️You are my inspiration and I am honored to not only have taught you but to have you in my life through your family, school and your story.

Alline Lima

2/12/2018 02:14:23 pm

Rylie! You’re energy and bravery through all of this has encouraged and inspired many people! It was such a blessing meeting you in Middle School and seeing how much you love and trust Jesus is admirable! My prayers go out to you and your family!! You’re very loved! Keep your head high! You got this!

Katelyn Grant

2/12/2018 03:34:42 pm

Rylie,
You are such an inspiration to every one. Know all of us are here to fight along with you. Your story is changing the lives of others, and will continue too. Your bravery and determination is impeccable. Keep it up! God loves you and so do we!

Jason Fuller

2/12/2018 05:18:20 pm

So we were praying for you tonight as a family and Wellborn asked about the process of chemo. Can you share what it’s like? What’s the process?

Rye

2/12/2018 05:46:48 pm

Hi! I miss y'all! Let Wellborn know that Chemo itself is actually a pretty easy process. At Texas Children's I am receiving treatment at the "Out Patient" clinic, meaning I don't have to stay in one of those scary sounding hospital rooms and be laying in a bed all the time. The Infusion center where I get my Chemo is a beautiful, colorful, open, floor to ceiling room with probably about a hundred chairs spread out everywhere. The chairs that patients get to sit in are larger recliners with nice cushions, and then any friends or family can sit around you also. It is a super relaxed environment and there are even craft activities happening during infusion time as well as live music! From here on out, I will have a port (a little spot in my chest where I will receive all my medicine) and they will hook me up to the port for 5 to 30 minute segments for me to receive my medicine, and then I'm all finished :-)

Coach Griffin

2/12/2018 06:23:48 pm

Rylie, you are truly an inspiration. The Griffin’s and our new church are praying for you. You truly have a gift and it is so amazing that you have the strength and wisdom to share it. We will keep praying and telling your story. Love from Abilene.

Ann Chenault

2/12/2018 06:30:44 pm

Rylie I have shared your story so much with friends &co-workers their greeting now is “has Rylie posted a new chapter?” What an amazing view on life you have & what ministry you’re sharing at a young age! What a warrior you are! What a mighty God we serve!!! Love you!!!

Annie link

2/12/2018 07:03:33 pm

Hey there sweet girl! I started following your story a few days ago and I’m just in awe of your strength and how much you radiate God’s sweet, unending love! Your encouraging and amazing blog posts are such a good reminder that God’s love can radiate through the toughest of sitauations and trials. Thank you for sharing your story and I am so glad I found your page!!! Sending so much love and so many prayers your way!!💓

Jen Corona

2/12/2018 07:15:35 pm

I am going to look up some of these musicals. I don't know why but have always thought I wouldn't like musicals....well I love Sound of Music....that's a musical right? You've inspired me to check these out. So far it seems you have seen all of the one's people here have mentioned. You are a very well rounded young lady Rylie! Hang tough Girl on a Mission :) Ava says HI! AND HUGS

Cindy G

2/12/2018 07:30:16 pm

You are so wise! You figured out early that He is in control of this journey! I on the other hand being in my 40's at the time and a mother of 2 boys thought I was in control until I went for Round 2 of treatment. That's when I realized I was not in the driver seat but a passenger. I hope your treatment went well today. I pray the nausea and reflux stays away and the leg cramps get better. Praying for you!

Julia Shaver

2/12/2018 08:11:01 pm

You are very special, Rylie York. Keeping you and all your family in prayer, often multiple times a day!!!

Psalm 16:8 (NIV)
I keep my eyes always on the Lord.
With him at my right hand, I will not be shaken.

Lauren White

2/12/2018 08:38:27 pm

Sooo- you should definitely listen to Dear Evan Hansen if you haven’t already. Also, a Houston friend of mine told me about this program in your hospital that allows patients to record songs! Here’s the info: http://www.purplesongscanfly.org/programs

Gracie Hill

2/13/2018 09:51:29 am

Hi Rylie!! You don't know me but I saw Jadelynn Brooke's post about you and I knew I needed to follow you! I love the faith that you have in God during this process, and as I am trying to strengthen mine, I figured it would help if I followed you on your journey. I just want you to know that I praying for you all the way from Kentucky! Stay strong!!💜💪🏻💪🏻 -Gracie Hill

Darla Thomas

2/13/2018 10:05:53 am

Prayers continue for you Rylie ...

Mark 5:34 - "And he said to her, “Daughter, your faith has made you well; go in peace, and be healed of your disease.”

One of my favorite musicals that I saw many years ago in Houston actually was Jekyll & Hyde, with Linda Eder playing the lead. The songs, the music, her voice, it was truly life-changing for me. I remember buying a cassette tape in the lobby of the theater and playing it in my car until it broke. If you can look up "Someone like me" from that musical and listen to Linda Eder sing it, it is breathtaking. Stay strong beautiful girl, and again, please let us know if there is anything we can do for you. You and your family remain in our hearts and prayers.

Rye

2/13/2018 06:01:34 pm

Thank you! I will make sure to look it up!

Jessica Spindle

2/13/2018 02:53:16 pm

Rylie,
First off I am SO INSPIRED by your constant faith in our savior and SO PROUD of you for keeping your head held high and keeping your faith strong!
You are such an inspiration. You gave me a new view on life, and how to really take everyday and live it to the fullest. Thank you for that.

After looking at some of your instagram photos, I noticed you went to Camp Ozark! I have cousins that worked there in the past! I was never able to attend, but always LOVED reading about camp, and seeing all the pictures!!

Keep your head held high sweet girl!
We are all praying for you!

Rye

2/13/2018 06:02:44 pm

Yes! Camp Ozark is one of my most favorite places on Earth!!!

Michelle Ross

2/14/2018 01:11:26 am

Hi Rylie!! I’ve never met you, but I just want to say I’m so in awe with your outlook on this chapter of your life. Everyday, I look for another update from you because you’re words are so inspiring to read. Even through the hardest earlthy obstacles, you still glorify Jesus - and that is something to praise for. I was wondering what’s your testimony. I’m a senior in college and still struggling to make Jesus my center, but your inspiring words make me realize God is everything.

Rye

2/15/2018 09:41:35 am

Hi Michelle! I am so glad you asked. I actually plan on making my testimony one of my upcoming blog chapters. Be on the look out for it.

Emma Thomas

2/14/2018 10:27:51 am

Rylie, you are such an inspiration! Your love of God is so present it is so amazing! You’ve got this! Love you!!

Also some of my all time favorites when I’m chilling are The Greatest Showman, Hamilton, Dear Evan Hansen (specifically You Will Be Found), and all songs from La La Land.

Have a great Wednesday and keep kicking cancers butt! You got this! ❤️

Kelly Condon

2/14/2018 03:12:14 pm

Rylie, you and your family are definitely in our thoughts daily. Today, Sean was excited to tell me that Emma had a pug box too for Valentine's Day that said Pugs and Kisses! Sean's box had a pug with a tuxedo that said Pug Me! I thought that was so cute.

This weekend we have almost 200 Team In Training teammates that have raised over $460,000 for The Leukemia & Lymphoma Society. I get the honor of supporting and celebrating them this weekend. You will be on my mind as we continue to fund research for better treatments!

My family and I can talk about musicals all the time! My first musical to see in New York City was Ragtime with Brian Stokes Mitchell and Audra McDonald. They are a powerful combination and it was a pretty amazing experience for my first musical on Broadway. Finding Neverland was the first musical my kids saw on Broadway and it is now a family favorite. On road trips when the kids get a little stir crazy-- we just put on that soundtrack and they start singing along! We have the PBS Broadway videos and Lost Treasures plus a lot of musicals on video! Let us know if you ever want to borrow them.

We will continue to pray for you and your family!

Rye

2/15/2018 09:43:30 am

Wow! That is awesome!!

Tiana warren

2/14/2018 09:28:41 pm

I know u don’t know me but your story is amazing touched me so much, u are rlly making a difference. But what’s your fav musical I love Hamilton❤️

Rye

2/15/2018 09:45:41 am

I absolutely LOVE Hamilton!!! My favorite that I've seen on Broadway would have to be Wicked or Once!

Lindsay Free

2/15/2018 02:30:54 pm

Hi Rylie! I am friends with Kelly Condon. She is our LLS contact, and she told me about you and sent me the link to your blog. I am so happy she did. It is an honor to be able to be so included in your thoughts and feelings throughout this journey. We so often take things for granted. You have a fantastic outlook on things. I have and will still pray for strength for you, your family, and all those who care about you, but it is clear to see the Lord has already blessed you with so much strength and wisdom. I live in St. Petersburg, FL and Phantom of the Opera is currently playing at the Mahaffey theatre in Tampa. This year will be my 6th or 7th time seeing it. It is my all time favorite. Such a beautiful story. Makes me cry every time. Now, in regards to some dancing music, I’m not much of a dancer, but I have a playlist for when I’m running. One of my favorite songs is very upbeat and kind of sounds like something that could be on stage. You’re much younger than I am, so I apologize if this is not your cup of tea, but it’s “Tightrope” by Janelle Monae. Some of her other stuff is very fun and with a classic sound. I hope you’re having a good day today. God bless you!

Pop Pop

2/15/2018 03:26:34 pm

I am thinking of you and praying constantly for continued victories....God is so good...

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February 12th, 2018

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